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Friedreich’s ataxia care

Where do you need care?

We can provide care in your home anywhere in England & Wales

Finding the right support for independent living

Although Friedreich’s ataxia is a progressive condition, with the right support in place, it is possible to retain an independent lifestyle. That’s where specialist home care can help.

Whether you are looking for a dedicated live-in carer or regular home visits for set times of the day or night, your support plan will be built around you, your needs and your lifestyle to help enable your independent living.

Because the symptoms of Friedreich’s ataxia affect everyone differently, we believe that there is no one-size-fits-all approach to care. This is why our specialists work closely with other professionals to create an individual support plan that best meets your requirements and what you hope to achieve.

Call us if you’d like to discuss the options for getting the support you need at home, or request a free consultation to meet with your local Helping Hands specialist in person.

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Caring for someone with Friedreich’s ataxia

Care for Friedreich’s ataxia is unique to your needs and circumstances. From 30-minute care visits through to 24-hour live-in care for advanced needs, having the right support to suit you can be arranged in your own home.

If you’re supporting a loved one with Friedreich’s ataxia but feel that you need a short break, respite care enables you to take some time to yourself while ensuring that there is someone on hand to provide the right support. You can even take a carer with you on holiday so you can enjoy a break as a family.

With fully-trained carers who are committed to providing the highest standard of care, an independent lifestyle with Friedreich’s ataxia is possible. Because we provide a fully managed service, we can adapt the support you receive as your needs change with a locally based manager on hand to ensure any adaptations are carried out smoothly.

How home care can help

Our support workers can help with anything from carrying out personal care and getting ready for the day, through to managing meals and making sure you’re safe moving around your home. Handpicked according to your needs and personality, that are there to ensure you feel comfortable at all times.

It’s always important to us that you are satisfied with the support you receive. That’s why we put you at the heart of your care. Our carers, while always there to help if you need them, will always respect your privacy and personal space, placing a special focus on enabling your indpendence.

We completely understand that asking for help is a major step. Our dedicated care team is here to talk you through the options to see whether home care will suit your or your family.

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It’s important to have a person-focused approach. We help people with varying levels of care needs, including those with Friedreich’s ataxia, giving them each the support they need to live a life of comfort.

Hannah Gambrell, Clinical Nurse Manager at Helping Hands

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Specialist support for Friedreich’s ataxia

Offering a fully-regulated service, we have a team of clinical nurse managers who have decades of experience in supporting people with advanced care needs within their own homes.

Having provided live-in care since 1989, our person-centred approach helps people across England and Wales who live with Friedreich’s ataxia to achieve the lifestyle they want.

Our experienced clinical team works alongside other professionals who might be involved in supporting someone with Friedreich’s ataxia. Whether that’s an occupational therapist to aid mobility or a dietician to put together a suitable diet plan, we are here to ensure you have all the right support available within your own home.

We also have strong connections with a network of clinical commissioning groups, working closely with them to ensure the care we provide is exactly what you expect and require.

We believe that there’s more to care than just experience. Each of our specialists work carefully to match our customer with a carer who has similar interests, hobbies and even beliefs.

Each of our carers go through strict checks before joining our team and have also graduated from our industry-endorsed Centre of Excellence.

As well as being trained on how to assist with mobility and personal care, we also provide ongoing training, including on specialist areas such as:

  • Hoisted transfers
  • Continence care
  • Catheter care and stoma management
  • Feeding assistance
  • Medication support

How live-in care is helping David

Darnette has been supporting David since 2016 David is from Devon and is living with Fredreich’s ataxia. Having been largely supported by his family for several years, the time came when David’s sister, Sarah, felt that some extra help was needed. That was when she came across Helping Hands.

Initially wary about having a live-in carer, David’s family soon realised that they needed further help, especially when it came to David’s mobility and keeping to a routine he was comfortable with. They met with one of our clinical nurse specialists who worked with them to put a support plan in place with a carer with the right experience and character.

This live-in carer is Darnette, and she has much experience in supporting people with advanced care needs. Sharing a love of religion with David and his family, she has built a fantastic relationship with them all and is helping David to live life with independence and comfort.

Read David’s story

Page reviewed by Rebecca Bennett, Regional Clinical Lead on November 30, 2021

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