Great care can help someone with Friedreich's ataxia to have an independent lifestyle.
Whether you are looking for a dedicated live-in carer or regular home visits for set times of the day or night, your support plan will be built around you, your needs and your lifestyle to help enable your independent living.
Because the symptoms of Friedreich’s ataxia affect everyone differently, we believe that there is no one-size-fits-all approach to care. This is why our specialists work closely with other professionals to create an individual support plan that best meets your requirements and what you hope to achieve.
From 30-minute care visits through to 24-hour live-in care, the right support for you can be arranged in your own home.
If you’re supporting a loved one with Friedreich’s ataxia but feel that you need a short break, respite care enables you to take some time to yourself while ensuring that there is someone on hand to provide the right support. You can even take a carer with you on holiday so you can enjoy a break as a family.
With fully-trained carers who are committed to providing the highest standard of care, an independent lifestyle with Friedreich’s ataxia is possible. Because we provide a fully managed service, we can adapt the support you receive as your needs change with a locally based manager on hand to ensure any adaptations are carried out smoothly.
How home care can help
A home carer can support you practically, physically and emotionally.
Our support workers can help with anything from carrying out personal care and getting ready for the day, through to managing meals and making sure you’re safe moving around your home. Handpicked according to your needs and personality, they are there to ensure you feel comfortable at all times.
It’s always important to us that you are satisfied with the support you receive. That’s why we put you at the heart of your care. Our carers, while always there to help if you need them, will always respect your privacy and personal space, placing a special focus on enabling your independence.
It’s important to have a person-focused approach. We help people with varying levels of care needs, including those with Friedreich’s ataxia, giving them each the support they need to live a life of comfort.
Hannah GambrellClinical Nurse Manager
Specialist support for Friedreich’s ataxia
Offering a fully-regulated service, we have a team of clinical nurse managers who have decades of experience in supporting people with advanced care needs within their own homes. Our experienced clinical team works alongside other professionals who might be involved in supporting someone with Friedreich’s ataxia. Whether that’s an occupational therapist to aid mobility or a dietician to put together a suitable diet plan, we are here to ensure you have all the right support available within your own home.
As well as being trained on how to assist with mobility and personal care, we also provide ongoing training, including on specialist areas such as:
At Helping Hands, our home care is tailored to your needs and wishes.
Having provided live-in care since 1989, our person-centred approach helps people across England and Wales who live with Friedreich’s ataxia to achieve the lifestyle they want.
We believe that there’s more to care than just experience. Each of our specialists work carefully to match our customer with a carer who has similar interests, hobbies and even beliefs. Your care plan will be developed around your specific needs and preferences, and will be adapted accordingly as your condition and circumstances change.
How a live in carer is helping one of our customers, David
Read about how we're helping David to live independently in his own home.
We love sharing stories about how our wonderful carers are helping their customers to continue living on their own terms in their own homes.
To help David with mobility and everyday tasks and routines, his family opted for a live-in carer, and he’s since found a new lease of life through the support he gets from his carer Darnette.
Ataxia care customer
Read David's Story
David is from Devon and is living with Fredreich’s ataxia. Having been largely supported by his family for several years, the time came when David’s sister, Sarah, felt that some extra help was needed. That was when she came across Helping Hands.
Initially wary about having a live-in carer, David’s family soon realised that they needed further help, especially when it came to David’s mobility and keeping to a routine he was comfortable with. They met with one of our clinical nurse specialists who worked with them to put a support plan in place with a carer with the right experience and character.
This live-in carer is Darnette, and she has much experience in supporting people with advanced care needs. Sharing a love of religion with David and his family, she has built a fantastic relationship with them all and is helping David to live life with independence and comfort.
How to arrange ataxia care
We try to make arranging care simple and stress-free so that we can focus on what really matters: your care needs. Speak to our team today to begin your journey.
Speak to our team
Call our team of experts to talk through your options and any questions you may have
Free home care assessment
Your local Helping Hands manager will visit you to discuss your care requirements
Find your carer
We’ll help to match you with a carer who meets your preferences and has the right skills
Helping Hands Home Care is registered and therefore licensed to provide services by the Care Quality Commission (ID: 1-101671690) and the Care Inspectorate Wales (certificate number: W15/00000831/O001/0001). For more information visit www.cqc.org.uk and www.careinspectorate.wales* All calls to 0843 numbers will cost you 7p per minute plus your phone company’s access charge. All calls are recorded for training purposes.