Motor neurone disease (MND) care
Specialist MND support in your own home
As motor neurone disease progresses, you may need extra support with your condition.
With the progression of motor neurone disease (MND), you may find that you, your family member or friend are struggling with mobility, or that speech is becoming affected by your MND condition. You may require a little extra support with PEG/RIG tubes and non-invasive ventilation care that family members may not be able to provide you with on a full time basis.
At Helping Hands, we employ expert MND carers who can provide practical, physical and emotional support to you in the comfortable, familiar surroundings of the home that you love.
Our carers can help you with:
Managing your symptoms
Our condition-led care will focus on helping you to live with the symptoms of your condition, however straightforward or complex they may be
Physiotherapy
We can work alongside local physiotherapists to ensure you are receiving appropriate treatment for muscle cramps and stiffness
Light medical support
If you have been prescribed Riluzole, we can help you manage your medication and monitor the effects it may be having
Mobility assistance
Our carers all receive expert mobility training so can safely help you to get in and out of bed, as well as move around your home
Pain management
We can support you with pain management and prescribed pain relief so that you are as comfortable as possible at all times
Lifestyle changes
We’ll help you adapt your home and your routines to ensure you’re able to continue being independent for as long as possible
Treatment of motor neurone
Living with motor neurone disease can mean adapting to progressive symptoms over time.
Here at Helping Hands we can help to support you with managing your symptoms at home to ensure that you are able to make necessary changes to your lifestyle and surroundings to support independent movement for as long as possible. We know that remaining in your own surroundings, amongst friends and family is a great way of remaining positive when coping with MND. That’s why we offer MND care at home, where you are most comfortable, and more likely to remain as independent as possible.
Progressive symptoms of motor neurone disease can include:
Specialist palliative care
As the condition progresses, many people living with MND require palliative care.
Helping Hands have extensive experience providing palliative care for customers who live with MND. We understand the complexities of the condition and how symptoms can worsen over time. Due to the progression of the condition, we’ll help you and your family discuss your options as symptoms progress. This may include whether or not you would consider a feeding tube if you were no longer able to swallow food or liquid.
Your carer will be there to help you through the entire process if you want and need a little extra support, and can also provide you with respiratory support if this is needed.
Live-in care really has given me my life back and a purpose. Now I have events to look forward to such as holidays and days out.
Jacky, Customer
We take care of your carer
It takes a special combination of patience, empathy and compassion to be a Helping Hands carer.
That’s why we’re extremely proud of our exceptional people and why we’re trusted by so many families to provide care and companionship to those who need support, across the country.
We make sure we continue to support our people after the join us, so they can deliver at their best for you, the customer. In 2024, we were recognised by the Financial Times as a Top 500 employer.
We directly employ all our carers
Every Helping Hands carer is directly employed by us, meaning everyone receives holiday pay, annual leave and pension contributions.
A supportive culture
We ensure our carers have access to dedicated managers and the help and support they need to carry out their role.
Comprehensive training and ongoing development
Our comprehensive training ensures our carers are fully ready to provide a wide range of support to customers from day one while our professional development programme ensure our carers can continue to develop their skills and access opportunities.
Reward and recognition
Our carer Reward and Recognition Programme – Moments of Kindness – celebrates the impact of small gestures and the actions of carers who go the extra mile to create joy, raise a smile, or offer reassurance or a sense of calm. Winners receive shopping vouchers and are featured in our magazine, Voices.
Hear how we’re helping our customers at home
We love sharing stories about the difference our care makes to our customers. Read about how we’re helping Sally to live with the symptoms of her MND in her sixties, and how we’re supporting Hannah to live the independent, joyful life that she wants.
Sally
Motor Neurone Disease care customer
Hannah
Cerebral Palsy care customer
How to arrange MND care
At Helping Hands, we’re committed to making every step of the care journey as straightforward and stress-free as possible. Talk to our team today to begin your journey.
Speak to our team
Our friendly, knowledgeable team can answer your questions and talk you through your options. We are available 7 days a week.
Book a free care assessment
Your local Helping Hands care manager will visit you to understand your needs and preferences and discuss how we can help. We can visit you at home, in hospital or even a care home to carry out the care assessment.
Confirm your care package
We create a tailored care plan for you to review. Once you’ve agreed the plan, we can organise care in as little as 24 hours.
A fully regulated home care provider
Here at Helping Hands, our service is regulated by the Care Quality Commission (CQC) and the Care Inspectorate Wales (CIW)
This means we need to consistently meet high standards and are monitored by our regulators.
