Live-in support for people with muscular dystrophy or spinal muscular atrophy
A Helping Hands carer can support you in the familiar surroundings of your own home.
Muscular dystrophy and other muscle wasting conditions like SMA can affect approximately 1 in every 1,000 people across the UK. Even though such conditions are rare, we provide customers living with muscular dystrophy with support from professional carers. We can provide you with specialist care if you or a loved one has a muscle-wasting condition, and our carers can also provide respiratory support at home. Our carers will have regular contact with your doctor and other medical professionals that assist you to ensure that we provide you with treatment and care that is specific to your medical needs. We can help monitor and care through dysphagia and liaise with SALT team; likewise, many customers need our support with their PEG regime.
Condition-led care
Every case of muscular dystrophy is unique, which is why we’ll always offer you a care plan that is designed around your personal circumstances and condition
Responsive support
Our muscular dystrophy care is responsive and can be adapted as your needs change, which is essential when supporting a complex medical condition
Fall prevention and management
We’ll work with you and your OT to make sure your home is accessible and free of trip hazards, and that you’re confident in your ability to move around
A familiar environment
Staying at home for care means you’ll be able to manage and adapt to your symptoms in a familiar environment where you’re comfortable and secure
Experienced carers
You’ll get dedicated support from carers who are fully trained and experienced in caring for customers with a muscle wasting condition
Emotional support
A significant part of our holistic approach to muscular dystrophy care is ensuring that both and your loved ones are emotionally supported
A personal muscular dystrophy and spinal muscular atrophy care plan
With Helping Hands, your care will be tailored to your personal needs.
To ensure we are putting your medical requirements and your preferences first, we will put together a detailed home care plan tailored to you which will include your medication and your mobility needs and limitations, plus your interests and hobbies. We do this to make sure you’re completely comfortable with the home care that we provide; your plan can always be altered if there’s an area of support that you require more or less assistance with. It is this level of person-centred care which means we can focus on the outcomes that you want to achieve and regularly review against them.
A fully regulated home care provider
Here at Helping Hands, our service is regulated by the Care Quality Commission (CQC) and the Care Inspectorate Wales (CIW)
This means we need to consistently meet high standards and are monitored by our regulators.
