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Motor neurone disease (MND) care

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We can provide care in your home anywhere in England & Wales

Specialist support within the comfort of your home

With the progression of motor neurone disease (MND), you may find that you, your family member or friend are struggling with mobility, or that speech is becoming affected by the MND condition. You may require a little extra support, both medical and emotional, that family members may not be able to provide you with on a full time basis.

Helping Hands employs specialist carers who can help with daily tasks as well as medical support when required. Our carers work alongside customers’ octors and local healthcare professionals to ensure the care they provide for people with motor neurone disease is of the highest standard. We only employ the most capable and friendly carers, so that you or your loved one receive care from someone who is trustworthy and passionate about helping people.

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Treatment of motor neurone

Living with motor neurone disease can mean adapting to progressive symptoms over time. Symptoms of motor neurone can include loss of strength and balance, difficulty swallowing, slurred speech, and difficulty walking. As these symptoms progress there may be a need to make changes to your routine and to your household.

Here at Helping Hands we can help to support you with managing your symptoms at home to ensure that you are able to make necessary changes to your lifestyle and surroundings to support independent movement for as long as possible. We know that remaining in your own surroundings, amongst friends and family is a great way of remaining positive when coping with MND. That’s why we offer MND care in your own home, where you are most comfortable, and more likely to remain as independent as possible.

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Live-in care really has given me my life back and a purpose. Now I have events to look forward to such as holidays and days out… read more

Jacky, a customer living with MND

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MND care from Helping Hands


Jacky with her friends and her live-in carer The care you receive from a Helping Hands carer will depend on what your medical and personal requirements are. We will take into account your interests and hobbies as well as the treatment you are currently receiving, so that your personal care plan reflects your specific requirements.

We can work with local physiotherapists to ensure you are receiving appropriate treatment for muscle cramps and stiffness. If you have been prescribed with Riluzole, we can help you manage your medication and monitor the effects it may be having. We can support you with pain management and prescribed pain relief so that you are comfortable and can manage your symptoms.

Specialist palliative care

Helping Hands has extensive experience providing palliative care for customers who live with MND. We understand the complexities of the condition and how symptoms can worsen over time. Due to the progression of the condition, we will also help you and your family discuss an advanced directive looking at your options as symptoms progress. This may include whether or not you would consider a feeding tube if you were no longer able to swallow food or liquid. These decisions can be extremely difficult for you and your family to discuss, but your carer will be there to help you through the entire process if you want and need a little extra support. We can also support you with respiratory support if this is needed.

Sally's story: living with MND

Sally is in her sixties and was first diagnosed with motor neurone disease 12 years ago, she has very high-level complex care requirements – but her condition needn’t mean that she has to forfeit her independence.

As her disease progressed, Sally found that she required more assistance with day-to-day living.

Returning home from hospital following treatment for MND-related respiratory failure meant that Sally wanted support from a live-in carer to help her re-establish her routine. Helping Hands was able to provide this tailored service by taking the time to really understand her unique physical and emotional situation.

Sally’s carer, Fiona, enabled her to regain control over her life by working alongside a visiting carer and Sally’s family to ensure that she received flexible care to suit her needs. Having been taught by our award-winning training team, Fiona was able to confidently assist Sally with her nebuliser, transferring from her bed to her wheelchair, flushing her PEG tube and preparing her meals.

Fiona’s support means that Sally is able to continue doing what she loves the most – going out with her family and spending time with her baby grandson. The companionship and emotional support a live-in carer provides are invaluable to Sally as she and Fiona meet the challenge of her motor neurone disease together.

Page reviewed by Carole Kerton-Church, Regional Clinical Lead on November 10, 2021

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